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Albinism Trust

Albinism Trust is looking out for the interests of people with Albinism.  In general we aim to foster capability & enjoyment of life.    We are a small group without funding which  gets on with the job doing what it can on an as required basis.  

Having a Constitution is one thing 'doing the job' is an other.  The Trustees are thinking about various suggestions and ideas.   If there is anything you would like us to consider please let’s know. 

Send an email by clicking on this link albinism@inspire.net.nz

One of the most important jobs for us is making connections with persons who have and live with Albinism.   There are a variety of common practical every day things to be considered and many interesting experiences or insights to share.  We can all learn from one and other.   Please let us have your thoughts and experiences regarding the following :-     

    •  Eye sight and economic vision

    •  Skin care and protection

    •  Socialisation and mobility

    •  Education and Vocation

    •  Home and family life

Albinism Trust was Registered on 12th October 2007 with the following objectives :

1. To study and research Human Albinism

2. To foster and promote personal and public understanding of Human Albinism

3. To support, encourage, educate and inform parents, siblings, family and friends about Human Albinism.

4. To gather and disseminate information about Human Albinism

5. To be an advocacy and support organisation for persons with Albinism

6. To encourage realistic, positive, empowering and enabling attitudes in relation to Human Albinism in home, family, community, health, education, employment, business, leisure, scientific and academic life.

7. To recognise the diversity and fullness of human potential found amongst people with albinism.

8. To solicit donations, grants, subscriptions or bequests and establish manage or administer an independent fund of money for Charitable purposes within New Zealand.

9. To establish and maintain a subscription or donors list.

Can you help by making a Tax Deductable donation or grant payable to Albinism Trust?

 

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Albinism Trust   wants to obtain funding assistance from the Royal NZ Foundation Of The Blind.  We plan on making a case to the Foundations Board in early 2010.

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The  Albinism Trust  is l working with other groups and organisations such as AFA and NOAH.  

www.albinismaustralia.org

www.albinism.org

 

 

 

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